CLRD                     

Coalition for the Legal Rights of People with Disabilities
 

Minutes of the November 13, 2007

by Linda Byrne

MEMBERS IN ATTENDANCE:

Jen Honig, Co-Chair, Mental Health Legal Advisor’s Committee (MHLAC)

 Wendy Alexander, Disability Law Center (DLC)

Bill Allen, Disability Policy Consortium

Linda Byrne, DLC

Ralph Calderaro, Disabled Persons Protection Department

Sandra Carter, MHLAC

Colleen Flanagan, Easter Seals

Kevin Hall, CCHR

Evelyn Kaufman, M-Power, CFAR

Amy Marcus, MHLAC

Jessica Schambach, MHLAC

 Introductions, Reports & Announcements:

 Co-Chair, Jen Honig, called the meeting to order at 10:20.m. and welcomed all to today’s meeting. She informed members that Stan would not be able to co-chair today as he was at the First Circuit for a mandatory settlement conference for the Ricci case.  Introductions were made, and the following announcements were made:

 Evelyn Kaufman informed members that a hearing will take place on 11/15/07 at Worcester State Hospital to discuss three Department of Mental Health (DMH) proposed regulations regarding patient rights for individuals with mental health issues in emergency rooms. 

The first regulation would allow the DMH to authorize people under Section 12 orders to be sent to the emergency room on the way to the mental health hospital. DMH patients often wait a lengthy amount of time while in a psychiatric crisis and would be subject to unnecessary medical tests (with excessive force if necessary). 

The second regulation would allow DMH to use restraints while transporting patients from ERs to psychiatric facilities and from facilities to medical appointments, court, etc.

The third regulation would allow DMH employees to act as hearing officers in DMH eligibility appeal hearings.  This is unfair and is a conflict of interest.

If you’re interested in providing testimony to oppose the proposed regulations, please call Cathy Levin (617-623-0807).

Jen Honig spoke of the H. 1871, the Mental Health Parity Bill, and H. 3534, An Act to Further Define Adverse Determination. Susan Fendell, an attorney with MHLAC, requested that CLRD consider supporting these two pieces of state legislation.  H.1871 would require that insurers cover treatment for all mental health and substance abuse services.  And H.3534 would redirect the burden of proof of medical necessity from the clinician to the providers.  

These bills were heard by the Joint Committee on Mental Health and Substance Abuse on October 1st.  An e-mail with the above information, along with the bills, were sent to CLRD members.  They were asked to review the information on the bills and vote as to whether CLRD should designate support for either or both bills.  Were CLRD to vote to support either of the bills, it would take such steps as submitting letters of support to the Legislature. Voting on this was closed on 10/29/08. Eleven votes came in, and the voting response was: 9 in favor and 2 against.   Jen stated that she has written a letter of support for one bill [H. 3534]. 

In addition, Jen also brought up the DUA Compliance issue that DLC’s Attorney Tom Murphy had asked that CLRD members vote on via e-mail.   Results and further information may be discussed at the next meeting.

Jen also spoke of Poly Cobb’s anti-aversive petition.  Poly was to have presented today, but for reasons unknown could not be here.  This will be redistributed to members.

CLRD’S Presentation:  Youth In The Juvenile Justice System

Jen Honig presented on MHLAC’s project representing youth in the juvenile justice system.  Just for Youth: Advocating for Youth was recently released by MHLAC.  This book identifies various rights of a child who goes through the DYS system in Massachusetts as well as the DYS system.  It can be found at: http://www.mass.gov/mhlac/Justforyouthfinal.pdf .

Jen gave an overview of current concerns identified by juvenile justice advocates, both nationally and in Massachusetts.  She discussed issues regarding the disproportionate number of DYS youth of color, the lack attorney access (once they are incarcerated and classified), the lack of appropriate and individualized mental health assessment and treatment, and the lack of adequate education (both regular learning and special education) for youth under DYS.  Twenty years ago, Massachusetts was touted as a model state because it moved kids out of large settings and into the residential program.  Sadly, Massachusetts does not fall into this category at this time.  Currently, Missouri is considered a model state for providing services for youth in the juvenile justice system.

Jen provided a brief outline of the services delivered to kids in the DYS system in Massachusetts and the rights of youth under DYS.  She explained the various steps a child goes through; starting with their arrest, alternative lock-up, pre-arraignment detention, the court process involved, post-arraignment detention, commitment length, placement (in secure treatment facility, residential program, and/or community program), supervision level assessment (8 levels, with level #8 as the most restrictive), education provided, and grant of conditional liberty (similar to parole) and hopefully ending with a child’s return to their home in the community.  DYS has the authority to extend the commitment of a youth who has turned 18 years old. DYS usually terminates their relationship at this time, but an “extension of commitment” can be applied to a youth whom DYS believes poses a danger to the public.  DYS can apply to the court for approval to extend the child’s commitment until they are 21 years old.  The time a youth has served in a mental health facility receiving treatment is generally not counted toward their time in DYS.

MHLAC provides direct representation of youth with mental health and emotional problems in both the community and in institutional settings and advocates for basic rights and appropriate services.  When it became apparent that the number of DYS youth with mental health disabilities was increasing, MHLAC became more interested in working with the DYS population.  Jen noted that the National Center for Mental Health and Juvenile Justices research suggests that youth in the juvenile justice system shows that 60 - 70% have a diagnosable mental disorder and that 20% have a serious mental disorder. Jen stated that statistics regarding the percentage of kids with mental health fluctuates greatly.

Kevin Hall added that 54% of kids in DYS are DSS clients.  Kevin noted that many of those kids can be labeled with mental health issues and are then placed on antidepressant medications.  He added that these medications have been known to double the suicide rate among certain age groups.

Jennifer noted that MHLAC also became interested in helping DYS youth because there was a lack of representation once these kids are committed to DYS.  CPCS counsel is appointed to represent them in court and if committed to DYS at their staffing meeting (a sentencing proceeding which determines their location and length of commitment).  But, there is no formal representation after that point by a defense attorney.  Often, these kids are not legally represented if any legal issue arises once they’re committed either in a facility or in the community.

MHLAC represents post-dispositional, incarcerated DYS youth in civil matters.  They also assist them when they return to the community. Jen stated that MHLAC’s focus is on education, placement, rights, restraint, medication treatment options, mental health assessment and services, and transition to the community issues.  Once a kid gets back into the community, their concerns continue.  Often their education has suffered.  They have missed out on current subject learning and, for youth entitled to special education services, educational services which were listed on their IEP’s.

Jen addressed a question regarding MCAS.  She noted that it is difficult to get MCAS scores that are aggregated for DYS youth, but here is one case where DYS does have aggregate data.  [After the presentation, Jen found this information: the number of FYS youth in residential placements that took the grade 10 MCAS tests for the first time in spring of 2005 continues to rise.  The percentage of youth who passed the grade 10 English test increased to 51% in 2005 from 47% in 2004.  The percentage of youth who passed the grade 10 Math test increased to 38% in 2005 from 28% in 2004.]

Jen added that she has seen that DYS tries to bring in parents to make certain decisions as parents retain legal custody for DYS-committed youth, but there are some areas in which DYS has decision-making authority, either legally or practically.  One difficulty is that youth may have several DYS case workers as they move through the DYS system.  Parents and kids must learn to relate to different people as this occurs.

Jen commented that often it is difficult to access DYS materials on the Internet, such as regulations governing DYS.  [However, after the presentation, Jen found that DYS has now posted their policies on their website at: www.mass.gov/dys (there is a link to “Policies” on the right-hand side).]

Ralph Calderaro asked Jen what plans MHLAC has when it determines the results of their project.  Jen responded that they would hope for more grants, which will in turn provide more legal representation to represent DYS youth.  Ralph suggested taking the results to the Commissioner and the Secretary of EOHHS to enforce communication issues between the Commonwealth’s departments or agencies.

 The meeting ended at 12:00 p.m.

 [Please Note: CLRD’s next meeting is scheduled for Tuesday, January 29, 2008 at Skadden, Arps at One Beacon Street, in Boston.]

 

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